Jul

29

Finding support and light at the end of the tunnel

Posted by preciouschild

July 29, 2009 | Leave a Comment

The hardest thing I have found as the parent of a child with special needs - is the feeling of being alone - of thinking people don’t understand.
Having a child with special needs can make you feel isolated, overwhelmed and exhausted. Sometimes you get so focused on the special need that you forget to notice [...]

Jul

25

Birthday celebrations

Posted by preciouschild

July 25, 2009 | Leave a Comment

K-Oz just celebrated his 12th birthday this past week. Time passes so fast and as a parent, I can’t help but think back to when he was born. Since he is my oldest - he was my guinea pig. I was 24 when K-Oz was born and I read everything I could about being a [...]

Jul

22

A phobia?

Posted by preciouschild

July 22, 2009 | Leave a Comment

We saw the new pediatric neurologist on Monday. She seemed nice and was easy to talk to. She didn’t seem to look down her nose at us - which is always good, and a real plus in my book.
The new doc seems to think that K-Oz’s current issues with bugs - more accurately flying bugs [...]

Jul

19

Seeing the new doctor

Posted by preciouschild

July 19, 2009 | 1 Comment

Tomorrow (July 20) is when we meet the new pediatric neurologist. K-Oz told my husband tonight that he’d really like to have an answer - or at least a better understanding of the issues he is dealing with.
He was specifically referring to his freak out switch that gets tripped every time he encounters a flying [...]

Jul

16

An upcoming appointment

Posted by preciouschild

July 16, 2009 | 1 Comment

Next week we have an appointment scheduled to take K-Oz to the neurologist in St. Louis. We are anxious for the appointment for a number of reasons. K-Oz’s behavior seems to be getting more out of sorts and we are hoping the doctor can give us some insight.
While his OCD seems to have settled down [...]

Jul

14

Some days I just feel like beating my head against a wall. . .

Posted by preciouschild

July 14, 2009 | 1 Comment

Okay, so I know that’s not a “good mom” statement. It’s true though. Some days, I just want to crawl back in bed and hide, or beat my head against the wall in frustration.
I love my son. I love all three of my children. I adore them actually. Some days, though, dealing with the ups [...]

Jul

6

Celebrating little victories

Posted by preciouschild

July 6, 2009 | 1 Comment

I read a blog post this morning written by a friend. In the blog, she ponders on the little victories she sees in her daughter - who has mild cerebral palsy.
I can certainly relate. When you have a child with special needs, every small thing is worth celebrating. While you take for granted that children [...]