Aug

29

Friday Share

Posted by preciouschild

August 29, 2008 | 2 Comments

Farrell’s Son Has Special Needs
Irish actor Colin Farrell has spoken for the first time about the difficulties he faces raising a son with special needs. The heartthrob says his 4-year-old son James suffers from a rare form of cerebral palsy known as Angelman Syndrome, which affects his speech and motor skills. But the star is […]

Mar

18

Tired of the Fight

Posted by preciouschild

March 18, 2008 | 2 Comments

Cross-Posted at Sparks and Butterflies as well
Do you ever just get really really tired? Tired of it all? Tired of the drama… Tired of being the “responsible adult…” or the “responsible parent…” Tired of dealing with all the kids issues, and having to be on top of it all, and […]

Mar

2

The 10 Commandments

Posted by preciouschild

March 2, 2008 | Leave a Comment

These are the 10 Commandments of Caregiving which can be found in much further detail at Leeza’s Place.

TAKE THE OXYGEN FIRST
NEVER ASSUME
HAVE ONGOING FAMILY CONFERENCES
DO NOT ISOLATE
DO NOT TAKE ANYTHING PERSONALLY
PLAN AHEAD/HAVE CONTINGENCY PLANS
DO NOT FALL PREY TO SHAME & STIGMA
USE COMMUNITY RESOURCES
HONOR SACRED MEMORIES
FIND HUMOR IN MANY PLACES

Mar

1

Welcome to Holland

Posted by preciouschild

March 1, 2008 | 5 Comments

I am often asked to describe the experience of raising a child with a disability-to try to help people who have not shared that unique experience to understand it, to imagine how it would feel like this…
When you’re going to have a baby, it’s like planning a fabulous vacation trip-to Italy. You buy a […]

Feb

18

Dealing with the Unknown

Posted by preciouschild

February 18, 2008 | 4 Comments

One of the hardest parts of parenting children with special needs, mentally speaking, is the unknown.
From wondering whether your child will get enough of an education to survive on their own as an adult, all the way to wondering if your child will survive the night.  Those unknowns can be really really difficult.
Take Joseph…  Will […]

Feb

14

Dignity, Or Lack Thereof

Posted by preciouschild

February 14, 2008 | 1 Comment

On MSNBC, today, you can find an article along with video, about a disabled man and his treatment by a deputy.
Truthfully, I’m sickened by it.  However, Kyron is much more coherent about it then I am, and you should go read her article about it.

Feb

7

Typical vs Atypical

Posted by preciouschild

February 7, 2008 | 1 Comment

My kids are my kids.  They just “are.”  I don’t compare them…  They’re both special needs, but completely different kinds of needs.  But one is neurotypical and the other not.  I never really notice the difference…  mainly because we do what needs to be gotten done, and it doesn’t matter who for.
Every once in a […]

Feb

7

Tools That Rule - Special Needs Toys

Posted by preciouschild

February 7, 2008 | 1 Comment

Sorry about biting the dust yesterday.  You know to go to bed when the computer screen starts sliding off to the right.
But I’m back today.  Got a new tool for you!  Specialneedstoys.com!  In the interest of disclosure, I have never used them, so this is just information…  Not a review.
From their About Us page:
We […]

Feb

1

Free for All Friday

Posted by preciouschild

February 1, 2008 | 4 Comments

Well…  It’s that time again…  Got a grievance?  Got a complaint?  Got a praise?  It’s free-for-all-Friday!  Let loose in the comments.
As for me, I’ve got a gripe that maybe you all can help with.
As I’m sure you can all understand, babysitters are an issue with me.  Because I don’t necessarily know what my oldest is […]

Jan

31

Thursday Tools - Online Groups

Posted by preciouschild

January 31, 2008 | 2 Comments

One things that seems very universal in terms of parenting special needs kids is feeling solitary.  Like you’re the only one dealing with it and everyone else has “normal” lives.  It’s isolating.
I belong to an online group at Cafe Mom.  There are tons more…  check out the social groups in any social networking site you […]

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